Tallaght Hospital will hold a forum for patients and families living with Myelodysplastic Syndromes (MDS) this November.
MDS is a group of diseases where the bone marrow in the body fails to make enough healthy blood cells causing serious symptoms including fatigue in patients.
Tallaght woman Sinead Mahon and her family helped to set up a support group for the illness in 2012 after her own mother was diagnosed with MDS.
Sinead told InTallaght: My own mother was diagnosed back in 2010 and is currently not on any treatment and is doing very well thank god. When my mam was diagnosed there was no support no information in Ireland and we had to travel to the UK to get information.”
“We got a lot of information on the internet which was from the UK and United States which sometimes wasn’t the best information. Since then we have set up a website for Irish patients www.mdsireland.com, which is still being worked on at present but is live and a facebook page.”
The free event for MDS patients and their family will take place at the MDS Centre of Excellence in Tallaght Hospital on Friday, November 17th from 10am to 4pm.
Guests will have the opportunity to participate in an informal discussion around quality of life issues for patients as well as new clinical trials, diagnostic methods and therapies.
The event has been organised by the MDS UK Patient Support Group in partnership with the MDS Support Group for Ireland and Northern Ireland to raise awareness of the illness around the country.
Experts in Bone Marrow Transplant and Fatigue Management will also be on hand for a question and answer session on the day.
Sinead said: “The MDS Ireland Booklet has been printed with the hard work of the Irish Cancer Society especially Antoinette Walker and Prof Helen Enright of the MDS Centre of Excellence, Tallaght Hospital.”
For more information or to reserve a place at the Patient and Family Forum contact MDS UK: 020 7733 7558 or email firstname.lastname@example.org.